MY TINY WARDROBE BLOG & PRESS

Archie's Fight

Posted on February 20, 2016 by Amy Goller | 0 comments

Archie is 2 years old from Newcastle NSW, Australia and has recently been diagnosed with Acute Flaccid Myelitis and Anterior Horn Cell Disease. Archie has spent the last few months in the Intensive Care Unit at John Hunter Hospital in Newcastle.

Acute flaccid myelitis (AFM) is a condition that affects the nervous system, specifically the spinal cord, which can result from a variety of causes including viral infections.

This disease has only been seen in Australia TWICE before Archie's diagnosis and his is the most severe case they have seen. This disease has caused paralysis in Archie's right arm, both legs and his chest. Archie has been ventilated since his admission in November and only last week underwent a tracheostomy. There is currently no cure for Acute Flaccid Myelitis and therefore Doctor's are relying on information from around the world through other cases of this disease to work out a treatment plan.
Acute Flaccid Myelitis Blog about the illness in children
Archie's Mum Chloe

Anterior horn disease: Any of a group of diseases that affect the anterior horn cells which make up part of the spinal cord. The anterior horn contains motor neurons which primarily affect the axial muscles. 

With a long road ahead of him Archie has daily therapy sessions and is improving everyday!! With these 2 disease's being so rare it is unclear how long Archie's full recovery will take but it is expected to take months/years.
Acute Flaccid Myelitis Information For Parents

Archie's parents Chloe and Alex have been by his side everyday and have recently had to return to work.

Archie's Mother, Chloe, has started a blog that gives you more of an insight into the first few days of Archie's hospital stay: https://archiesfight.wordpress.com/

Please go to: 

Instagram: @archiesfight

 

Posted in Acute Flaccid Myelitis, Brave Parents Fight for Their Son, Diseases in Children